Enduring Hearts Walk for Life
Enduring Hearts Walk for Life remembers and celebrates the lives of our beloved young people who have died unexpectedly. Please consider making a gift to the Centre for Cardiovascular Research at the Centenary Institute.
Your support will help families impacted by sudden cardiac death
Sudden Cardiac Death is the tragic and unexpected passing of an otherwise healthy person which can be due to an underlying genetic heart disease. Two to three young Australians under 35 die every week from sudden cardiac death.
The death of a young person is an unimaginable tragedy that leaves families grappling with profound grief and uncertainty.
Alongside groundbreaking research at the cellular level, Centenary facilitates genetic counselling and care, helping families understand their risk factors by funding genetic analysis, through the Genetic Heart Disease Clinic.
When someone dies suddenly and unexpectedly it is possible they had an underlying genetic heart disease that they did not know about. Genetic testing is an important component of the investigation but is not covered by medicare for deceased individuals.
- Offer comprehensive whole genome sequencing to families impacted by sudden cardiac death
- Cover the cost of transporting the frozen blood sample of an individual who has died from Sydney to Victoria for appropriate testing
- Fund the salary of a part-time specialist cardiac sonographer who performs the clinical investigations on our families affected by sudden cardiac death.
- Allow the research to continue uninterrupted to find new genetic causes for sudden cardiac death to bring answers to grieving families.
